Why is Patient Participation Important?

Patients know best what it’s like to live with a disease or use a treatment. That’s why the EU HTA Regulation includes patients in both the JCA and JSC processes.

As a patient, you may:

• Share your experience, expectations, or concerns about the condition and current treatments.
• Help define what matters in the assessment (like quality of life or burden of treatment).
• Review reports and say if they make sense from a patient point of view.
• Join short online meetings with experts.

Your experience helps ensure these processes focus on real patient needs.

🎥 Watch: EUCAPA – Module 3: Patient Involvement in HTA (21:29)